Learn About Shawn's Journey

Friday, April 24, 2009

And here's what the results were from the EMU

April 23, 2009 at 10:47pm

Well, Shawn had his time in the Epilepsy Monitoring Unit at Barrow's Neurological.

He only had to be in the unit for one day (Thank goodness!).


The idea was to confirm or question the diagnosis of ESESS (Slow Wave Sleep Status Epilieptis). What the doctor there (Chapman) said was that they consider doing this "reset" treatment of dosing with Valium if Shawn was showing between 80 and 85% of his non-REM sleep. Shawn registered at 96-97% of these spikes.


Dr. Chapman did give some hope for us though, as he identified that he was very impressed at Shawn's level of functioning, as he sees kids with far less seizure activity with a lot less functionability. I guess it is kind of like a high revving sports car. He just runs hot.


Shawn was very well behaved in the room, considering that he had 23 electrodes glued to his head and those wires had him tethered to the wall. Having been through that process myself--he was marvelous. He sang his Sing-Star and watched Igor, and read his TAG books. Overall a very good hospital trip.


So Shawn is on his first night of being drugged out, and here's hoping that it resets his brain!!

Jim


Ready for bed in the EMU

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